Wednesday, September 17, 2008

A little update

I'm sorry it's been so long since an update. Besides Eddie's mom coming to visit we had another HUGE scare.

Last Thursday I got a phone call from a genetics counselor at Kaiser. When we had our last ultrasound they noticed that the baby had a choroid plexus cyst in her brain. A choroid plexus cyst is basically a hole in her brain that is pretty common in pregnancies. The bad part is that it can also lead to Trisomy 18, which is a not so pretty thing. They scheduled us a level II ultrasound to get a more detailed look at the baby and to see if the hole was closed up on it's own already or was still there along with other signs of any abnormalities. Unfortunately we had to wait 6 days for this appointment. Those 6 days were HORRIBLE! There's nothing like waiting to find out if your daughter is going to die or not and not being able to do a damn thing about it.

Yesterday was our level II ultrasound in Oakland. I am happy to report that the choroid plexus cyst is completely gone, but they did find something else. They found what is called a mild ventriculomegaly. Basically one of the ventricles in her brain is slightly larger than it should be right now. After the ultrasound we met with the genetics counselor who gave us our new options. We could either A) have an MRI done so they could figure out exactly what is going on in her brain, B) have an amniocentisis done to see if there are any chromosonal abnormalities, or C) take what God chooses to give us with a child and just have another ultrasound in 7 weeks to see how her ventricle looks. We chose C. At this point in my pregnancy there is no way that I would be able to abort this baby under any circumstances. We both feel that it would be telling the baby that she is not good enough for us and that we were going to kill her. Worst case scenario is that the baby would have excess fluid in her brain and they would have to put a stint in her brain or she would have down syndrome. The mild ventriculomegaly is not an indicator of this alone it is usually followed by another signs of abnormalities which the baby has none.

The good news is that the radiologist feels they are just being overly cautious at this point. They did not see any other indicators on the ultrasound that she has any abnormalities and feel this is probably nothing.

The other good news is that the sex has been verified by another ultrasound tech and the radiologist and it's still a GIRL!!! I guess I'll believe it now that I've been told by 3 different people.

Please keep us in your thoughts and prayers!

3 comments:

Anonymous said...

Yay for confirmation that she is a definitely a girl! I hope everyone is being overly cautious (as they should be), and that everything is okay with baby GIRL (I love saying that!). We will be thinking about you, and praying for her health.

Dibeh said...

YEAH? It must have been an awful long week. What a way to get the confirmation that it is a she.
I will pray that your baby girl will develop to its full extent. Nothing but admiration for the decision you had to make. Wishing you lots of strength, belief and good health.
Lots of love. Praying and wishing is all I think I can do from here.

Heather @ Glitter and Gloss said...

Lots of hugs and strength! You and baby Paige are in my prayers!